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Piper Joy: Down Syndrome Awareness Month

Greenville SC Baby PhotographerDo you remember sweet Piper Joy from last year’s Down Syndrome Mini Sessions?  At just under two week old, Piper was the youngest little one with Trisomy 21 that I photographed in 2015.

Newborn with Down Syndrome

Piper’s story is incredible.  She is a rainbow baby after many losses.  And she is wanted, doted on, and simply adored by her parents.


Special Needs Baby Photographer

I could write a novel about this sweet girl, but her Mama Lori already did!  So I’ll simply share her words with you.

Diagnosis of Down Syndrome

Piper loves snuggles in the morning after she wakes up. She loves watching her doggies run and play. She loves when we talk and sing to her. When Piper sees either of us once we get home from work she greets us big smiles. She will laugh and giggle when we kiss her hands and feet, or when we kiss around that little neck. She plays with her toys and loves her pink Maraca. She enjoys meeting new people and she affects all those who meet her. Her smile is infectious, and complete strangers have been unable to resist holding her, once they do that, they love her. What do we love most about her? I guess we would have to say from the scares we had during pregnancy, to the prenatal diagnosis, all the way to now…we love her ambition and drive, the fact that she works so hard to achieve her milestones and she never quits trying and she never gives up. She has taught us how to be better parents and individuals in general. She has shown us our truth and what it means to have a special needs child, and we wouldn’t change it for the world.

When people see Piper we want them to see faith, hope, love and acceptance. We want them to see her beautiful little self and feel the love, warmth and acceptance she has for them as she freely and selflessly gives them her beautiful infectious smile. I want people to think after meeting Piper that if someday they have a special needs child that it would be a positive life change and not a negative one. We thank God every day for creating her just for us, but, he didn’t really create her just for us, because we have seen how she has affected and touched many people and will continue to do so for the rest of her life.

What would I say to a mama who just received a Down Syndrome diagnosis? I guess I might say something like this: “I imagine you may be scared, sad, maybe even angry, and that’s ok and very normal. Try not to dwell on those emotions for long. Take this time to learn as much as you can about your baby, because you and they deserve it. Just as with a typical baby, your son or daughter will have ups and downs, set backs and achievements. Because you’ve chosen to keep your gift and give him/her life you will soon experience a love for this child that you’ve not had for another. We love all of our children very much, but when you have a special needs baby, it is different and the emotions although very much the same as for our other children, are special in their own way, you will be a better person because your baby will open your eyes, your heart and soul to a life you couldn’t imagine you would have.”

Down Syndrome Baby Photographer Greer SC

 

 

Amanda: Greenville SC Special Needs Baby Photographer

Greenville SC Special Needs Baby Photographer

When she walked into the studio with her mama carrying her, I couldn’t help but squeal delight.  Amanda’s sweet arm rolls and curious expressions won me over instantaneously.

Baby Girl with Down Syndrome Pictures

We spent a few minutes digging through the studio wardrobe picked out our favorite items for Amanda to wear.  Her mama chose a the hand knit Caroline dress, a pink knit romper, and a lace sweater romper.  And Amanda loved them all!

Six Month Baby Photos Greenville SC

Amanda was almost six months old and just learning to roll and sit.  Her mama’s favorite thing about Amanda is how her eyes smile.  Her daddy knows how to make her giggle with silly songs.

Six Month Baby Photos Simpsonville SC

Amanda’s mama Anne wants the whole world to see how much Amanda is loved.  But also how much possibility is in her tiny body: she will sing and dance. Amanda a person with all of the potential and promise given to every person at birth.

Special Needs Baby Photography Simpsonville SC

Amanda reminded me so much of Lydia the first time I photographed her.  It seemed serendipitous that we should finish this second round of Down Syndrome Awareness Mini’s with a baby who reminded me of the little girl who launched this project.
Baby Toes Greenville SC

6 Month Baby Photographer Greer SC

Since Amanda was in the studio helping me welcome our sweet clients and Lydia was with her we were able to sneak a little image of the two babies together.  Lydia was delighted with the sweet “baybe!”  There were sweet kisses shared and lots of “oohing” and “awwing” from the mamas.  It was the perfect way to finish out this year’s Down syndrome awareness project.

Babies with Down SyndromeSweet baby Amanda, I can’t wait to see what amazing things you will do as you grow up!

Baby Girl with Down Syndrome Photographer Greenville SC

Brady: Down Syndrome Awareness Month

Brady met me with a curious stare.  He seems pretty easy going, but he wanted to see what I was like.

Down Syndrome

It didn’t take long before he started cracking all kinds of smiles for me.

Down Syndrome Portraits Greenville SC

Seriously, this little guy has a million different smiles.

Down Syndrome Pictures Greenville SC

But smiling wasn’t enough!  Brady love to give hugs.  And they are the best hugs ever. He hugged me every time he could reach me.

What if my baby has Down Syndrome?

He even had me carry him from set to set.

Down Syndrome People First

Brady loves music and obviously had a very joyful outlook on life.

 

His mama smiles wistfully when asked about how we can love Brady best, “Please just treat him with respect like any other human being.”  Brady is a person first and, just like you and me, he craves human interaction and love.

Ezra: Down Syndrome Awareness Month

Meet Ezra.

How do you take care of a child with Down Syndrome

 

This tiny ball of energy looks like total sweetness with those girls and this sly little grin.

facts about down syndrome

But don’t let him fool you, he can totally rough house with big brother Amari. He especially loves to be chased.

will big siblings love a child with down syndrome

Ezra also has a sweet side. He love cuddles while reading a good book with his mama.  And did I mention his curls?!

What is it like to have a child with down syndrome

Ezra has Down Syndrome, but having a genetic condition does not define him   He is person first: an adorable little guy just longing to be loved.

Zack: Down Syndrome Awareness Month

Meet Zack.

Down Syndrome Awareness Month Portraits

Zack is fifteen years old and a rising 9th grader.

He plays the drums in band class.

Zack loves to eat chicken and play with his two dogs Emma and Porscha.


What I need to know about down syndrome

Zack loves more than anything to make new friends and is always making people laugh.

For Zack, life is an adventure and learning.

 

If you are expecting a child with Down syndrome, Zack’s mama Mary wrote a little note just for you.

Dear mam who just found out your child has Trisomy 21,

First, congratulations! Your baby is an amazing gift!

Your job most of all is to just love your beautiful baby. Always treat him or her just like you would any other child.

I want you to know that you will now know the meaning of unconditional love.

And as time moves forward, mama, you will be the best advocate that your child. You will become your child’s best friend.

Take a deep breath, mama, and just love your your child. I promise everything will fall in place!

Love,

Mary

Just found out my child has down syndrome